Overview
Mesothelioma UK is a national charity dedicated to supporting people affected by mesothelioma. We work to improve care, fund research, and raise awareness of this asbestos-related cancer. Our work is data-driven and impact-focused, helping us deliver meaningful change for patients and families across the UK.
We are looking for a Data & Impact Manager (part time, 25 hours per week, 2-year fixed term contract) who will be responsible for the effective management, integrity, and use of Mesothelioma UK’s data systems, with a particular focus on:
- Supporting fundraising insight, supporter engagement and income-generation activity through accurate CRM data, segmentation and impactful reporting
- Management of the organisation’s CRM system, Donorfy
- Ensuring high‑quality, compliant data to support service delivery, reporting, and impact measurement
- Providing data oversight for the Mesothelioma Networks project, including reporting, monitoring, and assurance against contractual and grant requirements
The role plays a critical part in enabling Mesothelioma UK to demonstrate impact, meet governance obligations, and support strategic decision‑making.
Duties
CRM Management and Development
- Act as the system owner for Mesothelioma UK’s CRM, including configuration, maintenance, and user management
- Ensure the CRM supports operational needs across services, networks, fundraising, and reporting
- Work with fundraising colleagues to ensure supporter, donor, campaign and income data is captured consistently and can be used to inform engagement, stewardship and fundraising planning
- Develop and maintain data structures, fields, workflows, and permissions to ensure consistency and usability
- Provide first‑line support to staff using the CRM, including troubleshooting and user guidance
- Liaise with external CRM suppliers or developers as required
Reporting, Insight, and Impact
Produce compelling regular and ad‑hoc reports to support:
- Fundraising planning, supporter engagement, donor stewardship and campaign performance
- Service delivery monitoring
- Trustee reporting
- Funders and external stakeholders
- Work with colleagues to translate data into meaningful insights
- Support annual reporting, impact evidence and evaluation activity
- Respond to data requests in a timely and accurate manner
Data Quality, Governance, and Compliance
- Establish and maintain data quality standards, including data entry protocols and validation processes
- Ensure compliance with UK GDPR and data protection legislation, working with senior staff to manage risk
- Develop and maintain data governance documentation, including data dictionaries and process guides
- Monitor data completeness, accuracy, and timeliness, addressing issues proactively
- Support organisational policies relating to data retention, access, and information security
Mesothelioma Networks Project – Data Oversight
- Maintain oversight of all data collected through the Mesothelioma Networks programme, including activity, outcomes, and reporting returns
- Ensure network reporting aligns with:
- Network Development Contracts
- Standard Grant Conditions
- 6‑month, annual, and end‑of‑grant reporting templates
- Track reporting submissions, identify gaps or risks, and escalate issues as appropriate
- Produce summary dashboards and reports for internal monitoring, trustees, and funders
- Support assurance that network delivery data is accurate, complete, and audit‑ready
Cross‑Organisational Support
Work collaboratively with clinical, support, fundraising and operational teams to ensure data supports their work
- Provide training and guidance to staff on data systems and good data practice
- Contribute to service development and improvement through data‑led insight
- Support new projects or services with appropriate data capture and reporting frameworks
Requirements
Skills, Knowledge, and Experience
Essential
- Ability to understand the meaning and value of the available data and to present it in visually compelling ways
- Experience managing a CRM or similar database system
- Strong understanding of data management, data quality, and reporting
- Experience producing reports and dashboards for operational or governance purposes
- Good knowledge of UK GDPR and data protection principles
- Strong attention to detail and commitment to data accuracy
- Ability to work independently, manage competing priorities, and meet deadlines
- Excellent communication skills, with the ability to explain data concepts to non‑technical colleagues
- Ability to support with CRM reporting, donor segmentation and data quality and campaign insight
Desirable
- Experience working in the charity, health, or public sector
- Experience supporting or managing grant‑funded programmes
- Familiarity with NHS environments or multi‑organisation networks
- Experience of impact measurement or service evaluation
- Experience configuring CRM systems (e.g. workflows, automations, reporting tools)
Experience working with fundraising, supporter engagement, donor stewardship or income-generation data
Personal Attributes
- Methodical and organised
- Confident working with complex information
- Proactive and solutions‑focused
- Collaborative and supportive of colleagues
- Committed to Mesothelioma UK’s mission and values
Why Join Us?
At Mesothelioma UK, you’ll be part of a small, dedicated team committed to improving support for people affected by mesothelioma. We offer flexibility, a supportive working environment, and the opportunity to make a meaningful impact.
Closing Date: Friday 17th July
Pay: £29,635.67 per year
Benefits:
- Company pension
- Free parking
- On-site parking
- Sick pay
Work Location: Hybrid remote in Loughborough LE12 7AS
