About Us
Klinefelter Syndrome Support Scotland is a newly established charity dedicated to improving the lives of individuals and families affected by Klinefelter Syndrome (XXY).
Our mission is to raise awareness, reduce isolation, provide trusted support, improve understanding, and advocate for better healthcare and opportunities across Scotland.
Founded through lived experience, we are building Scotland’s first dedicated charity focused solely on supporting the XXY community. We’re looking for passionate volunteers who want to help build meaningful connections and strengthen our growing community.
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The Opportunity
We’re looking for a Volunteer Community Engagement Coordinator to help grow our charity through community outreach, partnerships, events and relationship building.
This exciting volunteer role is perfect for someone who enjoys connecting with people, building networks and creating opportunities that bring communities together.
Working closely with the Board of Trustees, you’ll help expand our reach across Scotland while developing partnerships with healthcare organisations, charities, businesses, schools, universities and local communities.
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What You’ll Be Doing
As our Volunteer Community Engagement Coordinator, you may assist with:
- Developing relationships with community organisations and partner charities
- Identifying opportunities for collaboration and partnership working
- Supporting awareness campaigns across Scotland
- Helping organise online and in-person events
- Building relationships with healthcare professionals and local services
- Promoting volunteer opportunities within local communities
- Encouraging community participation and engagement
- Representing the charity at community events and networking opportunities where appropriate
- Supporting the development of local support groups and community initiatives
- Helping identify opportunities for fundraising and community projects
- Working alongside trustees to strengthen the charity’s presence throughout Scotland
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We’re Looking For Someone Who Is
✔ Friendly and approachable
✔ Passionate about helping people
✔ A confident communicator
✔ Comfortable networking and building relationships
✔ Organised and proactive
✔ Enthusiastic about community development
✔ Committed to our mission and values
Previous charity experience is not required.
If you enjoy bringing people together and making a positive difference, we’d love to hear from you.
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Desirable Skills
Although not essential, experience in any of the following would be beneficial:
* Community engagement
* Partnership development
* Networking
* Event planning
* Public speaking
* Volunteer coordination
* Customer service
* Healthcare or charity sector experience
* Social media and communications
* Relationship management
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What You’ll Gain
Volunteering with us offers an opportunity to:
* Make a lasting impact on individuals and families affected by Klinefelter Syndrome
* Gain valuable experience in community development and partnership working
* Develop leadership, communication and networking skills
* Build experience within a growing Scottish charity
* Work alongside passionate trustees and volunteers
* Receive references after a period of active volunteering
* Help shape Scotland’s first dedicated Klinefelter Syndrome charity from the ground up
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Time Commitment
We’re ideally looking for volunteers who can contribute around 2 hours per week, with flexibility around when those hours are completed.
Most meetings are held remotely during evenings or weekends, with occasional opportunities to attend community events across Scotland.
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Equality & Inclusion
Klinefelter Syndrome Support Scotland is committed to creating an inclusive, welcoming and respectful environment for everyone.
We actively encourage applications from people of all backgrounds, including those with lived experience of Klinefelter Syndrome, genetic conditions, disability, long-term health conditions, carers, family members, and allies.
Together, we can build a stronger, more connected and supportive community.
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Join Us
If you’re passionate about connecting people, building partnerships and helping communities thrive, we’d love to hear from you.
Join our founding team and help create a future where nobody affected by Klinefelter Syndrome has to face their journey alone.
Job Type: Volunteer
Pay: £1.00 per year
Benefits:
Work Location: Hybrid remote in Scotland (Scotland)
