Rare disease Work, Jobs in London, Eng (with Salaries)

Regional Rare Disease Lead London
UCB —Slough
- Bachelor's degree
- No degree
8d
Information, Knowledge, and Support Adviser (Rare Dementia Support)
University College London —London
- £43,981 - £52,586 a year
- Full-time
- Bachelor's degree
- Organisational skills
- Communication skills
- Annual leave
- Employee assistance programme
Specialist, Quality Audits - Biosimilars
Advanz Pharma —London
- Travel
- Employee assistance programme
Founder in Residence, Unlocking systemic drug delivery for brain & CNS disease
Deep Science Ventures —London
- £4,166 a month
- Full-time
- Remote
- Doctoral degree
- Leadership
Quick apply
Sr Manager, Nordics& NECAD, International Patient Engagement
Vertex Pharmaceuticals —Paddington
- Full-time
- English
COA Manager
IQVIA —London
- Full-time
- Hybrid work
- English
- Bachelor's degree
2d
International HEOR & HTA Associate Director, NS
Novartis —London
- £69,440 - £128,960 a year
- Full-time
- Hybrid work
- Doctoral degree
- English
- Master's degree
Manager/Associate Director Scientific & Strategic Operations (AI Innovation)
Boehringer Ingelheim Ltd. —London
- Full-time
- Hybrid work
- Doctoral degree
- Computer Science
- Master's degree
Director, Patient Advocacy & Engagement - EMEA
Ultragenyx Pharmaceutical —London
- Full-time
- Hybrid work
- Bachelor's degree
- Travel
- Employee stock purchase plan
- Annual leave
7d
Principal Epidemiologist, Internal Medicine, Inflammation & Immunology (FSP Sponsor Dedicated)
IQVIA —London
- Full-time
- Remote
- Doctoral degree
- Writing skills
- Master's degree
- Work from home
Graduate Sales Development Representative - Healthcare Media (HF1352947)
Flourish —London
- £30,000 a year
- Full-time
- Business development
Quick apply
Book Department Volunteer
British Heart Foundation —London
- Employee discount
UK Corporate Affairs Manager
Amgen —Uxbridge
- Doctoral degree
- Master's degree
- Bachelor's degree
Senior Quality Auditor - Steriles
Advanz Pharma —London
- Hybrid work
- Communication skills
- Employee assistance programme
Clinical Analyst -UK
GeneDx —London
- £89,000 - £108,000 a year
- Remote
- Doctoral degree
- Computer literacy
- English
Programme Manager
Imperial College London —South Kensington
- £59,808 - £71,793 a year
- Full-time
- Doctoral degree
- University
- Organisational skills
6d
Senior Product Manager - Back Office Portfolio
CFA Institute —London
- £106,400 - £141,900 a year
- Full-time
- AI
- Communication skills
- Annual leave
Senior Director, Business Management, Strategy & Revenue Operations, Institutional Solutions
CFA Institute —London
- Full-time
- Leadership
- Annual leave
Manager, Content Factory - Operations + Personalization
Jazz Pharmaceuticals —London
- £128,000 - £192,000 a year
- Remote
- Master's degree
- Bachelor's degree
- Continuous improvement
- Annual leave
Scientific Affairs Manager, UK - London
Rhythm Pharmaceuticals —London
- Full-time
- Doctoral degree
- Presentation skills
- Communication skills

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Regional Rare Disease Lead London

UCB -
Slough

Apply Now

Job details

Permanent
8 days ago

Qualifications

Stakeholder collaboration
Bachelor's degree
Partnership building
Territory management
Multidisciplinary collaboration

Full job description

Make your mark for patients

We are looking for a Regional Rare Disease Lead to join our UK & Ireland Rare Disease team, covering the London Area.

About the Role

As a Regional Rare Disease Lead, you will represent UCB within the rare disease communities we serve, with a clear focus on improving outcomes for people living with rare diseases. You will build trusted, collaborative relationships across healthcare ecosystems, combining strong scientific knowledge with commercial excellence to support appropriate access to innovative therapies. This role plays a vital part in delivering UCB’s patient‑centred, science‑driven rare disease strategy.

Who You’ll Work With

You will report into the Lead for Rare Diseases UK & Ireland and work closely with cross‑functional colleagues across medical, access, and commercial teams. You will also partner extensively with healthcare professionals, patient networks, and ecosystem stakeholders across your assigned region.

What You’ll Do

Operate consistently with the highest ethical standards, prioritising patient needs and compliance.
Build meaningful, insight‑driven relationships that create value for rare disease patients.
Develop deep understanding of regional healthcare ecosystems, patient pathways, and stakeholder needs.
Execute strategic territory and account plans aligned to patient journeys and ecosystem collaboration.
Communicate balanced, high‑quality information on rare disease therapies to healthcare professionals.
Maintain expert knowledge of disease areas, standards of care, and relevant clinical data.
Act as a trusted advocate for rare disease patients, promoting appropriate tools and resources.
Deliver agreed commercial objectives while contributing to strong national brand performance.

Interested? For this role we’re looking for:

Bachelor’s degree or equivalent experience.
Strong curiosity and motivation to understand patient needs and deliver meaningful impact.
Proven field‑based experience in biopharmaceutical sales, account management, or field reimbursement.
Experience within specialty, neurology, and/or rare disease environments is strongly preferred.
Track record of contributing to successful product launches.
Ability to use multichannel and digital tools to engage healthcare professionals effectively.
Solid understanding of medical, scientific, and healthcare concepts relevant to rare diseases.
Collaborative, agile, and solution‑oriented approach to working in a cross‑functional environment.

Are you ready to ‘go beyond’ to create value and make your mark for patients? If this sounds like you, then we would love to hear from you!

About us
UCB is a global biopharmaceutical company, focusing on neurology and immunology. We are over 9.000 people in all four corners of the globe, inspired by patients and driven by science.

Why work with us?
At UCB, we don’t just complete tasks, we create value. We aren’t afraid to push forward, collaborate, and innovate to make our mark for patients. We have a caring, supportive culture where everyone feels included, respected, and has equal opportunities to do their best work. We ‘go beyond’ to create value for our patients, and always with a human focus, whether that’s on our patients, our employees, or our planet. Working for us, you will discover a place where you can grow, and have the freedom to carve your own career path to achieve your full potential.

At UCB, we’ve embraced a hybrid-first approach to work, bringing teams together in local hubs to foster collaborative curiosity. Unless expressly stated in the description or precluded by the nature of the position, roles are hybrid with 40% of your time spent in the office.

UCB is an equal opportunity employer. All employment decisions will be made without regard to any characteristic protected by applicable laws.

Should you require any adjustments to our process to assist you in demonstrating your strengths and capabilities contact us on [email protected]. Please note should your enquiry not relate to adjustments; we will not be able to support you through this channel.

Apply Now

Refine Your Search

rare disease jobs in london, eng

Regional Rare Disease Lead London

Information, Knowledge, and Support Adviser (Rare Dementia Support)

Specialist, Quality Audits - Biosimilars

Founder in Residence, Unlocking systemic drug delivery for brain & CNS disease

Sr Manager, Nordics& NECAD, International Patient Engagement

COA Manager

International HEOR & HTA Associate Director, NS

Manager/Associate Director Scientific & Strategic Operations (AI Innovation)

Director, Patient Advocacy & Engagement - EMEA

Principal Epidemiologist, Internal Medicine, Inflammation & Immunology (FSP Sponsor Dedicated)

Graduate Sales Development Representative - Healthcare Media (HF1352947)

Book Department Volunteer

UK Corporate Affairs Manager

Senior Quality Auditor - Steriles

Clinical Analyst -UK

Programme Manager

Senior Product Manager - Back Office Portfolio

Senior Director, Business Management, Strategy & Revenue Operations, Institutional Solutions

Manager, Content Factory - Operations + Personalization

Scientific Affairs Manager, UK - London

I want to receive the latest job alerts for rare disease in london, eng

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