University Hospital Southampton NHS Foundation Trust is delighted to offer a fantastic opportunity to work with us.
Please see below for detailed job description of the role.
This post is for a Clinical Nurse Specialist/Genetic Counsellor to work for the Wessex Clinical Genetics Service (WCGS) based at the University Hospital Southampton (UHS). UHS is the designated network lead centre for the PTEN Hamartoma Tumour Syndrome (PHTS) Rare Disease Clinical Network, led by Dr Katherine Lachlan, Consultant Clinical Geneticist.
The overarching aim of this funded role is to facilitate equity of access to care and research into PHTS in England and the wider UK.
The Clinical Nurse Specialist/Genetic Counsellor will be responsible for supporting the development of the national UK PTEN Hamartoma Tumour Syndrome (PHTS) Multi-Disciplinary Team Meeting. The meeting is held virtually, providing a forum for discussion and advice, together with signposting and development of appropriate referral pathways. The post will involve liaison with many specialities and other Trusts across the UK.
The post holder will also be the identified key worker for patients and their families affected by PTEN Hamartoma Tumour Syndrome (PHTS) referred to WCGS to co-ordinate their care and provide them with accurate and up to date information. They will have primary responsibility for the provision of specialist care co-ordination for this patient/client group, practicing autonomously as a core member of the multi-disciplinary team.
University Hospital Southampton is one of England's largest acute teaching Trusts, offering a wide range of learning and development opportunities to support your career aspirations.
Located on the south coast with an international airport and direct rail links to London, Southampton offers an ideal setting to live and work, with the New Forest, South Downs and Jurassic Coast.
We believe that using technology wisely shows strong time management and commitment to innovation. However, personalising your recruitment application to highlight your unique skills and experiences is crucial. Relying too heavily on generic, AI-generated content instead of drawing from your own strengths and accomplishments may lead to your application being rejected if multiple candidates present identical or similar information.
At UHS, we’re committed to providing a flexible working environment where possible. Whether you are balancing family, study, or your wellbeing with your career, we want to support you so you can help our patients.
At UHS, we proudly champion individuality, recognising that outstanding care is only possible with a diverse, inclusive team. We’re committed to creating an anti-racist, anti-discriminatory environment where everyone feels valued, safe, and empowered to make a meaningful impact in our communities. We welcome applicants of all backgrounds, identities, and experiences to join us in building a healthcare community where everyone can belong, thrive, and contribute.
Responsibilities
Provide Leadership in PTEN Clinical research Delivery locally and nationally. Specialist for own area of work/clinical speciality
Acts as a source of advice and expertise within own speciality and as research specialist
Lead on research and audit projects, including development, design and implementations; may be the lead for own profession in multi disciplinary team research projects; advise and monitor research conducted by other health professionals; disseminate research findings
Experience/Skills required
Registered Nurse/Midwife or similar with relevant nursing/ health related degree or MSc in related field (Genetic Counsellor)
Relevant experience working in NHS at band 6 level or above, or equivalent
Experience of working with adults, adults lacking capacity and children
Able to understand the use of research, evaluation and audit in practice.
Theoretical and practical knowledge relating to PTEN Hamartoma Tumour Syndrome and its management.
The post holder will provide specialist advice, education and support to patients, their carers and other health care professionals. They will practice clinically in agreed care settings and advise and support Divisions regarding the overall management of the service.
The post holder will work across professional, departmental and Trust boundaries as required to develop and support patient-centred seamless care, with particular responsibility for leading nurse-led/Genetic Counsellor care initiatives.
The project will work towards the priorities of the UK Rare Diseases Framework, which was published by the Department Health and Social Care in January 2021, with the aim of delivering improved care and support for people living with a rare disease, their families and carers.
This post is supported financially by PTEN Research (Charity Number 1173589) and will include liaison with the PTENUKI patient group (Charity Number 1172205)
